BLEEDS are a pain, BUT YOUR LIFE DOESN’T HAVE TO REVOLVE AROUND THEM…

Hemophilia-related bleeds can sometimes just happen, for seemingly no reason at all. And when they do, they may cause all sorts of problems – from the swelling that can make it hard to move, to the countless plans you’re forced to cancel.

But it doesn’t have to be like this – read on to find out more!

Can you guess how often
people on prophylaxis
bleed? Take the bleed
poll to find out!

Over the past year, how many bleeds have you had?

Select one of the following:

If you’re concerned about having bleeds while taking treatment for your hemophilia, talk to your health care team –

they can help you find a way to get them under control.

So, where do bleeds tend
to occur?

+
HEAD AND NECK
(INCLUDING THE EYES)3
+
NOSE BLEEDS AND BLEEDING IN THE MOUTH2 Mouth bleeds can be caused by cuts or scratches from sharp foods, from accidentally biting the tongue or cheeks, or from having dental work.
+
CUTS and scratches2 Cuts and scratches may sometimes reopen after they have clotted.
+
JOINT BLEEDS (HEMARTHROSIS)2 Most common joints affected are: 1
  1. Elbow
  2. Ankle
  3. Knee
+
BRUISING2
+
ABDOMEN3
+
Gastrointestinal
(stomach and intestines)2
+
KIDNEYS AND BLADDER2,3
+
MUSCLE BLEEDS2 Most common areas affected are:1
  • Forearem
  • Thigh
  • Lower back

Emergency Bleeds

Bleeds in certain places can be life-threatening or have severe life-long consequences if not treated as a medical emergency.4

Bleeds in the head (including the eyes) are uncommon, but if you’ve knocked your head and think it might cause a bleed, contact your hemophilia centre or seek emergency treatment right away.3 If you suspect bleeding in your neck/throat, abdomen, kidneys or bladder you should also seek medical attention right away.

Why do joint bleeds
matter so much?

Every joint bleed matters. Recurrent joint bleeds can have long-term consequences, including:5–8

  • Repeated bleeding into the same joint5
  • A loss of range of motion in the joint (the joint cannot be fully extended nor flexed)6
  • A loss of strength in the muscles around the joint7
  • Pain when using the joint6
  • Pain even when the joint is at rest.8


But, with hemophilia care advancing so rapidly, there might be things you and your health care team can do to help prevent bleeds from happening!

Watch the video clip below

to see what Jeffery, a psychotherapist
with hemophilia, has to say about
hemophilia-related bleeds…

Why not show others what it’s really like to deal with bleeds? Visit the meme generator to CREATE YOUR MEME

Struggling with bleeds?
Here’s what you can do:

Reach out to your health care team
to discuss how to manage your bleeds
Set an appointment reminder here

find OUT more information about managing bleeds
from your local patient organisation.

Canadian Hemophilia Society

301-666 Sherbrooke Street West
Montreal, QC H3A 1E7
Tel.: 514-848-0503
Toll-free: 1-800-668-2686
Fax: 514-848-9661
E-mail: chs@hemophilia.ca
Website: www.hemophilia.ca

References
  1. Kruse-Jarres R et al. Poster 175. Presented at the 11th Annual Congress of the European Association of Haemophilia and Allied Disorders, 7–9 February 2018, Madrid, Spain.
  2. World Federation of Hemophilia. Guidelines for the Management of Hemophilia. 2012. Available from: https://www1.wfh.org/publication/files/pdf-1472.pdf. Last accessed September 2019.
  3. Steps for Living. Identifying types of bleeds. Available from: https://stepsforliving.hemophilia.org/basics-of-bleeding-disorders/identifying-types-of-bleeds. Last accessed September 2019.
  4. Knobe K, Berntorp E. J Comorb 2011; 1(1): 51–59.
  5. duTreil S et al. J Blood Med 2014; 5: 115–112.
  6. Auerswald G et al. Blood Coagul Fibrinolysis 2016; 27(8): 845–854.
  7. van Vulpen L et al. Haemophilia 2018; 24(6): 44–49.
  8. Canadian Hemophilia Society. Joint Damage. Available at: https://www.hemophilia.ca/joint-damage/ Accessed: November 2019.